Jona has a horrible rash on her face. We've seen pediatricians here at Ft. Polk and they all say it is allergies. We did see and allergist. He confirmed she does have allergies. I went to him with the concern that she doesn't seem as strong as usual. She was fighting him and he said her strength was fine for a two year old little girl...that was my first hard lesson learned with Juvenile Dermatomyositis.... ALWAYS GO WITH YOUR GUT!
We also got lab results from the pediatrician that we saw a few days prior when she was falling alot. He did an x-ray and things seem fine with that but when he called me with the lab results they were CRAZY abnormal. He said we would watch her a few weeks. I was crying and terrified and he asked why...he didn't get it! I told him I was scared for her and I new something bad was wrong. He told me that he could be dying today of cancer, but he wasn't going to sit around a cry about it. I almost fainted...this is my baby. He was a pediatrician with the bedside manor of a ROCK.
After that drama a friend and I then went to see the head of Pediatrics at Bayne-Jones Army Hospital. He was WONDERFUL. This doctor was truly the gift God knew we needed. He felt it was an auto-immune disease and started making calls. By this time, she was getting worse by the hour. Jeff was away at the Army's National Training Center...so I was on my own. However, thankfully they sent him back early.
Jona began running a low grade temp 24/7 by this time and all she wanted was to be held. She couldn't even lay down to sleep. Poor baby. She had just turned two years old so she really couldn't tell us much. It was heart-breaking to see her going through this. Thank goodness he got us to Texas Children's Hospital. We saw Dr. Perez. She is AMAZING...although the idea of giving Jona Methotrexate was not my favorite. I sat in her office crying....begging her to spare Jona from this drug. She basically said that she saw my tears and understood my fears, but this was the only way to get her better and there really was no other choice....I trusted her with my life....really more than my life, it was my baby's life...
Jona has a horrible rash on her face. We've seen pediatricians here at Ft. Polk and they all say it is allergies. We did see and allergist. He confirmed she does have allergies. I went to him with the concern that she doesn't seem as strong as usual. She was fighting him and he said her strength was fine for a two year old little girl...that was my first hard lesson learned with Juvenile Dermatomyositis.... ALWAYS GO WITH YOUR GUT! 